Joining Your Lung Cancer Community

 In May I had the amazing opportunity to hang out with 150 lung cancer survivors in Washington DC as part of the HOPE Summit.  Last week I again had the chance to spend precious moments with the many lung cancer survivors who attended the IASCL's World Conference on Lung Cancer in Denver.  These connections between patients, physicians, and researchers, are unlike anything I would even have conceived of a decade -- or 5 years ago.  I will be sharing more in the near future to help all of you find your way -- whatever that happens to be - to feel the support of the amazing lung cancer community we have worldwide.  This week I'm excited to share that, not only are lung cancer support groups becoming more available, but groups for people coping with particular genomic types of lung cancer - for example, people with ROS1 mutations and ALK positive lung cancer - have been born.

Best wishes until next week,  Dr. Lynne

Someone forward you this email? No Sweat! Sign up here to get your own If you're having trouble viewing this email, click here Follow Us Joining Your Lung Cancer Community  In May I had the amazing opportunity to hang out with 150 lung cancer survivors in Washington DC as part of the HOPE Summit.  Last week I again had the chance to spend precious moments with the many lung cancer survivors who attended the IASCL's World Conference on Lung Cancer in Denver.  These connections between patients, physicians, and researchers, are unlike anything I would even have conceived of a decade -- or 5 years ago.  I will be sharing more in the near future to help all of you find your way -- whatever that happens to be - to feel the support of the amazing lung cancer community we have worldwide.  This week I'm excited to share that, not only are lung cancer support groups becoming more available, but groups for people coping with particular genomic types of lung cancer - for example, people with ROS1 mutations and ALK positive lung cancer - have been born. Best wishes until next week,  Dr. Lynne Lynne Eldridge MD Lung Cancer Expert ALK Positive Lung Cancer - Definition and Treatment  If you are one of the 3 to 10% of people with lung cancer defined as "ALK positive" you are likely learning that one of the new breakthroughs in lung cancer is being able to treat some people as if they had a chronic disease like diabetes -- control the cancer first with one medication designed for people with this mutation, and if and when the tumor becomes resistant, using a second line medication in this category.  For people with ROS1 mutations, the medication crizotinib is also making a big difference.  It was exciting seeing a group of people with ALK mutations and another with ROS1 mutations having come together this spring in DC, and continuing to keep in touch.  For those who are interested, check out this opportunity to participate in the GRACE EGFR, ALK, ROS1 patient forum in San Francisco in October.   READ NOW Lung Cancer Support Groups  How can you find an in-person, online support group, or cancer support community exclusively for people living with lung cancer?  Read more READ NOW Genetic Testing (Molecular Profiling) for Lung Cancer  If you are living with lung cancer and haven't heard about EGFR, ALK, and ROS1, make sure to check out this article.  Especially if you are a young adult lung cancer patient - the majority of whom have a targetable gene mutation, i.e. a mutation detected in the lung tumor for which specific treatment is available.  Even though these treatments are extending lives and improving quality of life, not everyone who should be tested has been tested.  Read more READ NOW What Should You Do First When You are Diagnosed with Lung Cancer?  For those of you who have just been diagnosed, the articles above may seem overwhelming.  Not only are you learning a language you probably never wished to learn, but are doing so at the most emotionally challenging time of your life.  Where do you begin?  Read more READ NOW Featured Articles • How to Make Rice out of Cauliflower • How to Talk to Someone Who Has Dementia • Why It's So Hard to Lose Weight With PCOS • 6 Ways Fitbit Beats the Apple Watch and 4 Ways it Fails • A Simple, Low-Carb Recipe for Crock Pot Chicken Cacciatore • 10 Low-Carb Stovetop Chicken Recipes • Should You Put Honey on Your Zits? • What to Know Before Trying Kava Advertisement About Lung Cancer  |  Follow Us You are receiving this newsletter because you subscribed to the Lung Cancer newsletter. If you wish to unsubscribe, please click here 1500 Broadway, 6th Floor, New York, NY, 10036 © 2015 About.com - All rights reserved. Privacy Policy.